Searchable abstracts of presentations at key conferences in endocrinology

ea0013p101 | Clinical practice/governance and case reports | SFEBES2007

Carney’s Triad

Hayat Haleema , Gilbey Stephen G

Carney’s Triad is a rare syndrome, with fewer than 30 cases reported with all three tumors (Gastrointestinal stromal tumor, extra-adrenal paraganglioma and pulmonary chondroma) present, and less than 100 cases with two of the three tumor types.We report a 45 yr old female who presented with bloating, dizziness, sweating and palpitations. Physical examination was unremarkable. Biochemistry showed a normal hormonal profile, 24 hrs urinary catecholamin...

ea0050p292 | Neuroendocrinology and Pituitary | SFEBES2017

The burden of arthropathy in acromegaly: results from an observational study

Kyriakakis Nikolaos , Lynch Julie , Orme Steve M , Gilbey Stephen G , Conaghan Philip , Murray Robert D

Introduction: Patients with acromegaly are often left with long-term sequelae, among which arthropathy is the most common. Studies have shown impaired quality of life (QoL) in patients with acromegaly, even after long-term remission. Arthropathy is a negative predictive factor of QoL, due to its impact on physical symptoms and functioning.Patients/Methods: To characterise further the extent of the acromegalic arthop...

ea0050p292 | Neuroendocrinology and Pituitary | SFEBES2017

The burden of arthropathy in acromegaly: results from an observational study

Kyriakakis Nikolaos , Lynch Julie , Orme Steve M , Gilbey Stephen G , Conaghan Philip , Murray Robert D

Introduction: Patients with acromegaly are often left with long-term sequelae, among which arthropathy is the most common. Studies have shown impaired quality of life (QoL) in patients with acromegaly, even after long-term remission. Arthropathy is a negative predictive factor of QoL, due to its impact on physical symptoms and functioning.Patients/Methods: To characterise further the extent of the acromegalic arthop...

ea0038p326 | Pituitary | SFEBES2015

Impaired quality of life in patients with acromegaly despite long-term disease control: results from a longitudinal study

Kyriakakis Nikolaos , Lynch Julie , O'Dwyer John , Gilbey Stephen G , Murray Robert D

Introduction: Patients with acromegaly are frequently left with long-term adverse sequelae. Cross-sectional evaluation of health-related quality of life (HR-QoL) using both generic and specific questionnaires (AcroQoL) has confirmed HR-QoL to be severely impaired in acromegaly. However, long-term HR-QoL outcomes following disease control have been less well-described.Methods: The disease specific questionnaire AcroQoL and three validated generic question...

ea0037gp.19.03 | Pituitary–Acromegaly | ECE2015

Perceived quality of life in acromegaly: results from a tertiary UK centre

Kyriakakis Nikolaos , Lynch Julie , Gilbey Stephen G , Webb Susan M , Murray Robert D

Introduction: Patients with acromegaly are frequently left with long-term adverse sequelae. When compared with individuals with other pituitary adenomas, patients with acromegaly demonstrate greater impairment in their quality of life (QoL).Methods: The disease-specific questionnaire, AcroQoL, and the generic psychological general well-being schedule (PGWBS) were used to evaluate QoL in an acromegaly patient cohort. Longitudinal data were also collected ...